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PatientsLikeMe member

Heal Together 一起治愈

建立有帮助的联系，学习，成为一个安全社区的一员，在你最需要的时候，他会支持你。

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问一些对你来说很重要的问题，并从人群中得到有助于你前进的答案。

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PatientsLikeMe致力于将患者放在首位。我们通过提供一种更好、更有效的方式让您分享您的真实世界健康经验，从而帮助您自己、他人和推进研究。

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About 关于

Who we are 我们是谁

Our mission

PatientsLikeMe's mission is to improve the lives of patients through new knowledge derived from shared real-world experience and outcomes. PatientsLikeMe的使命是通过分享真实世界的经验和结果获得的新知识来改善患者的生活。

Our story

Living better starts here 更好的生活从这里开始

Our core values 我们的核心价值

Patients first/Openness/Transparency 患者优先/公开/透明

Blog 博客

FAQ 常见问题

Funding 基金

How does PatientsLikeMe make money? PatientsLikeMe是如何赚钱的？

Philosophy 条款

Openness 开放性

Privacy 隐私

User agreement 用户协议

Research 研究

DigitalMe™ Publications & talks 出版与讲座

Contact 联系

分享、底部版权

CONDITIONS 治疗

2,800 conditions 18大类

Cancer 癌症

Breast 乳腺癌

We’re all in this for good. 我们都是为了健康

主题视频

What will we do next? 我们下一步怎么办？

You have already helped us learn 你已经帮助我们学习了

What is breast cancer? 什么是乳腺癌？

Common symptoms reported by people with breast cancer 乳腺癌患者的常见症状

Common symptoms 常见症状

Fatigue 疲劳

Stress 强调

Pain 疼痛

Anxious mood 焦虑情绪

Depressed mood 抑郁情绪

Generalized weakness (asthenia) 全身无力

How bad it is 对应不同症状的程度

4种等级柱状图：重、中、轻、无通过渐变色显示比例分布，4种

289 breast cancer patients report severe fatigue (21%) 289名乳腺癌患者报告严重疲劳（21%）

546 breast cancer patients report moderate fatigue (40%) 546名乳腺癌患者报告中度疲劳（40%）

361 breast cancer patients report mild fatigue (26%) 361名乳腺癌患者报告轻度疲劳（26%）

148 breast cancer patients report no fatigue (11%) 148名乳腺癌患者报告无疲劳（11%）

What people are taking for it 人们在用什么治疗(对应的症状)

Modafinil Amphetamine-Dextroamphetamine Methylphenidate 莫达非尼、安非他明-右旋安非他明、哌甲酯

Cigarettes Deep breathing and relaxation Listen to Music 香烟，深呼吸，放松，听音乐

Hydrocodone-Acetaminophen Gabapentin Tramadol 氢可酮醋氨酚、加巴喷丁、曲马多

其他治疗方式……

Treatments taken by people for breast cancer 人们对乳腺癌的治疗

Treatment name(s) 治疗名称

Chemotherapy 化疗

Lumpectomy 肿块切除术

Mastectomy 乳房切除术

Radiation Therapy 放射治疗

Lymph node removal (Lymphadenectomy) 淋巴结切除术

Breast Reconstruction 乳房再造

Type 类型

Prescription Drug 处方药

Surgery 外科手术

Procedures 程序

How many have tried 有多少（次）试过

Chemotherapy 化疗柱状图

1922

88 patients have reported taking this treatment within the past 5 years 在过去的5年中，有88名患者接受了这种治疗

其他治疗方案对应的柱状图……

Tried for

Tried for breast cancer (88) 试过治疗乳腺癌（88）

Compare treatments taken by people with breast cancer 比较乳腺癌患者的治疗方法

Treatment name(s)治疗名称

Chemotherapy 化疗

Lumpectomy 肿块切除术

Mastectomy 乳房切除术

Radiation Therapy 放射治疗

Lymph node removal (Lymphadenectomy) 淋巴结切除术

Breast Reconstruction 乳房再造

Perceived effectiveness 感知有效性

Chemotherapy 化疗有效性柱状图 for breast cancer (55 evaluations) 通过渐变色显示比例分布，5种

20 evaluations from breast cancer patients report major effectiveness of Chemotherapy for breast cancer (36%) 20名乳腺癌患者的评估报告显示化疗对乳腺癌的主要疗效（36%）

8 evaluations from breast cancer patients report moderate effectiveness of Chemotherapy for breast cancer (15%) 乳腺癌患者的8项评估报告显示，化疗对乳腺癌的疗效中等（15%）

7 evaluations from breast cancer patients report slight effectiveness of Chemotherapy for breast cancer (13%) 7来自乳腺癌患者的评估报告显示，化疗对乳腺癌的疗效轻微（13%）

20 evaluations from breast cancer patients report that they could not tell effectiveness of Chemotherapy for breast cancer (36%) 20名乳腺癌患者的评估报告称，他们无法判断化疗对乳腺癌的疗效（36%）

其他治疗方案有效性柱状图……

Side effects 副作用

Chemotherapy 化疗副作用柱状图通过渐变色显示比例分布，4种

13 evaluations from breast cancer patients report severe overall side effects for Chemotherapy (23%) 13名乳腺癌患者的评估报告显示化疗有严重的总体副作用（23%）

26 evaluations from breast cancer patients report moderate overall side effects for Chemotherapy (47%) 26名乳腺癌患者的评估报告显示化疗总体副作用中等（47%）

14 evaluations from breast cancer patients report mild overall side effects for Chemotherapy (25%) 乳腺癌患者的14项评估报告显示化疗总体副作用轻微（25%）

2 evaluations from breast cancer patients report no overall side effects for Chemotherapy (3%) 2来自乳腺癌患者的评估报告没有化疗的总体副作用（3%）

副作用的表象列表 ……

fatigue hair loss nausea diarrhea muscle and joint pain peripheral neuropathy bone pain headaches mouth sores (ulcers) chemo brain exhaustion acid reflux bad taste in mouth blurry vision decreased appetite depressed mood hot flashes memory problems menopause muscle fatigue pain in leg(s) sore mouth (stomatitis) swelling in legs…… 疲劳脱发恶心腹泻肌肉和关节疼痛周围神经病变骨痛头痛口疮（溃疡）化疗脑衰竭酸反流口臭味觉模糊视力减退食欲抑郁情绪潮热记忆问题更年期肌肉疲劳腿痛口疮口腔炎腿部肿胀……

Total evaluations 总评价

数字

Tried for

Tried for breast cancer (88) 试过治疗乳腺癌（88）

Who has breast cancer on PatientsLikeMe? 谁得了乳腺癌？

24 new patients joined this month 5094 say breast cancer is their primary condition 本月新增24名患者 5094 主要疾病乳腺癌

Age

柱状图

Sex

柱状图

男

172

女

5283

Types

柱状图

Angiosarcoma of the breast 乳腺血管肉瘤

Ductal carcinoma in situ (DCIS) 导管原位癌

1266

HER2-positive breast cancer HER2阳性乳腺癌

216

Hormone-receptor positive breast cancer 激素受体阳性乳腺癌

372

……

Diagnosis status 诊断状态

柱状图

Diagnosed 诊断

4334

Not Diagnosed 未诊断

151

Lung

结构如同类，内容略……

Liver

结构如同类，内容略……

……

Developmental and Chromosomal 发育和染色体

Tay-Sachs 泰—萨综合征

结构如同类，内容略……

Autism Spectrum 自闭症谱系

结构如同类，内容略……

Down Syndrome 唐氏综合征

结构如同类，内容略……

Digestive and Intestinal 消化道和肠道

Crohn's Disease

IBS

Ulcerative Colitis

Endocrine 内分泌

Diabetes: Type I 糖尿病：I型

Diabetes: Type II 糖尿病：II型

Hypothyroidism 甲状腺功能减退

Hyperthyroidism 甲状腺机能亢进

Eye, Ear, Nose and Throat 眼、耳、鼻、喉

Hearing Loss Glaucoma Macular Degeneration 听力损失青光眼黄斑变性

Heart, Blood and Circulatory 心脏、血液和循环系统

Immune, Inflammatory and Infections 免疫、炎症和感染

Kidneys and Urinary 肾脏和泌尿系统

Liver, Pancreas and Gallbladder 肝、胰、胆

Lungs and Respiratory 肺和呼吸

剩余8项……

TREATMENTS 治疗

Search 搜索

Prescription drugs 处方药

Duloxetine 度洛西汀患者数71916

What is Duloxetine? 什么是度洛西汀？

Common uses 常用

纤维肌痛重度抑郁症抑郁情绪广泛性焦虑症肌痛性脑脊髓炎/慢性疲劳综合征持续性抑郁障碍（心境恶劣）

Side effects 副作用

体重增加恶心性欲减退口干头晕脑雾

Join to ask questions and receive advice from patients who have used Duloxetine. Join Us! 参与提问并接受使用度洛西汀患者的建议。加入我们！

319 patient evaluations for Duloxetine 319例度洛西汀患者评估

患者案例逐一罗列

Effectiveness 有效性

Side effects 副作用

Adherence 坚持

Burden 负担

Dosage 剂量

建议和小贴士

Pregabalin 普瑞巴林患者数51449

结构如同类，内容略……

Gabapentin 加巴喷丁患者数50183

结构如同类，内容略……

See all 2132 prescription drugs 查看所有2132种处方药

Over the counter drugs 非处方药

Ibuprofen 布洛芬

Naproxen 萘普生

Aspirin 阿司匹林

See all 659 over the counter drugs

Supplements 补充剂

See all 2642 supplements

Physical therapy 物理疗法

See all 159 physical therapies

Equipment 设备

See all 599 equipment

Procedures 程序

Radiation Therapy 放射治疗

MRI (magnetic resonance imaging) 磁共振成像

Lifestyle modifications 改变生活方式

See all 338 lifestyle modifications

剩余6项……

Browse

Treatments by type: All treatments OR Alphabetically: 按类型的治疗：所有治疗或按字母顺序：

Duloxetine (Cymbalta, Yentreve, Cymgen, Yelate) 度洛西汀

Pregabalin (Lyrica, pregabalin CR, Maxgalin, Provelyn) 普瑞巴林（Lyrica、普瑞巴林CR、Maxgalin、Provelyn）

Gabapentin (Neurontin, Gabatin, Gralise, Ratio-Gabapentin, APO-Gabapentin...)

Individual Therapy 个体化治疗

SYMPTOMS 症状

750000+ patients with 2,800+ conditions are sharing about their symptoms and how they manage them. See what they’re saying about yours… 750000多名患者和2800多名患者正在分享他们的症状以及如何处理这些症状。看看他们怎么说你的…

未登录

Learn from patients like you 从这里学习…… Check out the most commonly reported symptoms across all conditions: 检查所有情况下最常见的症状：

Fatigue

Most common conditions: 最常见的情况：

fibromyalgiamultiple sclerosismajor depressive disorder(2,910 more) 纤维肌痛多发性硬化症重度抑郁症（2910多个）

Top reported treatments: 最受欢迎的治疗方法：

Motorized scooter/chairWheelchair (powered)Handicap/Disability Parking Permit(34 more) 机动滑板车/轮椅（电动）残疾人/残疾人停车许可证（34个以上）

What people are talking about: 人们在谈论什么：

There are 18,012 forum topics about fatigue. 有18012个关于疲劳的论坛主题。

Anxious mood

结构如同类，内容略……

Pain

结构如同类，内容略……

Depressed mood

结构如同类，内容略……

Stress

结构如同类，内容略……

Connect with others and learn from their experiences. Join now (it's free!) 与他人交流并从他们的经历中学习。立即加入（免费！）

加入、登录

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Bio

I'm your PatientsLikeMe hostess—ask me anything! Also please send comments and suggestions my way. When I'm not in the PatientsLikeMe forum, I'm trying a new restaurant, reading Lucky Peach, or playing with my dog, Moose.

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HOME/ MY HEALTH/ LEARN/ CONNECT 首页/我的健康/学习/连接

Account/ FAQ/ Crisis/ Log out 帐户/常见问题/危机/注销

消息提醒

首页

Share an update/ Create a post 共享更新/创建帖子

Featured post 特色帖子

MY HEALTH

Weight 重量

Enter your first Weight. Add your first Weight 输入您的第一个重量。增加你的第一个重量

DailyMe 每日记录

DailyMe history

看看你的状态是如何随着时间的推移而改变的，并了解哪些因素会影响你的状态。一天中的时间、一周中的某一天或季节会影响你的感受吗？经常给你的日常生活评分可以帮助你找到答案。

How are you feeling right now? 你现在感觉怎么样？

随时添加新的DailyMe。写一张便条，记录那些影响你健康和幸福的时刻。

增加一个DailyMe

DailyMe charts and history DailyMe图表和历史

Discovering patterns in your DailyMe history 发现日常生活中的规律

有没有特别的日子我更倾向于更新DailyMe？我的情绪变化有规律吗？随着时间的推移，我的情绪和我的健康有什么关系？

Understanding larger trends 了解更大的趋势

Doctor Visit Guide 医生就诊指南

Kickstart preparing for your next health visit with the Doctor Visit Guide. Decide which data you'd like to add to your report and make note of the important questions you'd like answered. Create a new report 使用医生就诊指南为您的下一次健康就诊做好准备。决定要添加到报告中的数据，并记下要回答的重要问题。创建新报表

My Conditions 我的状态

Use this tool to keep track of the symptoms you're experiencing. For a fuller picture of your health, complete your MonthlyMe questionnaire regularly in your health checklist. 使用此工具跟踪您正在经历的症状。为了更全面地了解你的健康状况，请在你的健康检查表中定期填写你的月度问卷。

My Treatments 我的治疗

What treatments are you taking? Include prescription drugs, over the counter drugs, physical therapy, equipment, etc. Add a treatment 你在做什么治疗？包括处方药、非处方药、理疗、器械等。添加治疗

Hospitalizations 住院

Add the date and purpose of your hospitalizations to your profile so other patients can understand your whole journey. 将住院日期和目的添加到您的个人资料中，以便其他患者了解您的整个旅程。

Labs & Tests 实验室和测试

All PatientsLikeMe members are welcome to add any available labs and tests to their profile. We may also suggest labs and tests related to your condition. 欢迎所有PatientsLikeMe成员将任何可用的实验室和测试添加到他们的个人资料中。我们也可以建议您进行与您的病情相关的实验室和测试。

My updates 我的更新

LEARN

Conditions 健康状况

Colon Cancer 结肠癌

Treatments 治疗

Symptoms 症状

Symptoms Update my symptoms 症状更新我的症状

CONNECT

Members 会员

People similar to you 和你相似的人

New members with colon cancer 结肠癌新成员

Recently active members 最近活跃的成员

Looking for someone specific? Search for members 找一个特定的人？搜索成员

Forums 论坛

Welcome to the PatientsLikeMe forum 欢迎来到PatientsLikeMe论坛

Join the conversation 加入对话

Advanced search 高级搜索

Thread 帖子

Featured Thread 特色帖子

Welcome! Introduce yourself here!

Hello and welcome to the PatientsLikeMe Room! You can introduce yourself in this thread to let others know that you're here. All PatientsLikeMe members are automatically part of this forum room - those with your condition as well as those with other conditions. Your badge in this room will reflect the primary condition you choose. You can also join other rooms as a patient (if you've added a relevant condition to your profile), caregiver, or guest. I'll start! I'm Liz, a community manager for PatientsLikeMe. You'll see me in all of the rooms, but I'm most easily found in the PatientsLikeMe Room. I'm here to listen to your feedback, answer your questions, and communicate with you about what's going on at PatientsLikeMe. I also let the PatientsLikeMe team know how you, the patients, are doing. If you have any questions, comments, or concerns - please send them my way. I'm glad you're here! Liz

5 medical innovations of 2020 that you may have missed!

……

Thread 帖子

COVID-19 Forum

结构如同类，内容略……

Cancer Forum

结构如同类，内容略……

Chronic Pain Forum

Digestive And Intestinal Forum

PatientsLikeMe Forum

Technical Help Using

PatientsLikeMe Forum

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Community 社区

All my conditions 我的所有状态

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